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Re: Case: Shaken Baby Syndrome? -Reply -Reply

Yes, I saw a summary of that paper in the new
service Grand Rounds produced by AAP.

Michael Ryan


>>> "Dogwood Ridge" <>
24/February/1999 02:45pm >>>
The British Journal of Ophthalmology did a nice
study showing that
convulsions don't cause retinal hemorrhages.  (no, I
don't get this journal,
but I read a good abstract with commentary in the
AAP Grand Rounds
publication). Regards- Kim Burlingham, MD
-----Original Message-----
From: Michael Ryan <>
To:  <>;

<>
Date: Monday, February 22, 1999 12:17 AM
Subject: Case: Shaken Baby Syndrome? -Reply


>The story is very similar to the case that I am
>currently dealing with in Sydney. The only
difference
>is that in my case there was no fall.
>
>Retinal haemorrhages require a great deal of
force
>for their production. Duhaime reported on 10
cases
>of infants with head injury who had retinal
>haemorrhages, 9 were due to SBS while the 10th
>was a child who was involved in a high speed
>Motor vehicle accident.
>
>The rare Amish disorder is Glutaric aciduria an
> inborn error of metabolism that is associated with
>developmental delay and epilepsy. The
>subarachnoid space is widened due to Cerebral
>atrophy making the brain susceptible to minor
>trauma. However, Glutaric aciduria does not
>explain the presence of the retinal haemorrhages.
>
>Michael Ryan
>Sydney Australia.
>
>>>> Dipesh Navsaria <>
>22/February/1999 12:34pm >>>
>Hello again.  What follows is not one of our
>patients, but a relative of
>one of our nurses.  As you'll see, there is a lot of
>confusion and
>questions they have, so I thought I'd throw it out
>here to see what people
>thought of it.  Apologies for any holes in the
clinical
>data -- I'm
>getting this third-hand...
>
>A one year old male child allegedly fell from his
>high chair one evening,
>suffering a contusion to the back of the head,
>followed closely by a
>seizure of unknown duration.  The fall was
observed
>by the child's
>stepfather and 8yo older sibling, who later backed
>up the story.  The
>child was transported to the local ER, where the
PE
>was significant for
>the presence of bilateral retinal hemorrhages.  A
>CT scan revealed two
>intercranial bleeds.  The child was transported to
>the regional tertiary
>care center for further care and treatment.  He
>spent four days as an
>inpatient, two days in the PICU and two on the
floor.
> He was then
>discharged.  No repeat CT was apparently
>obtained.  No report was made to
>DCFS or law enforcement. He had some
>neurological deficits after discharge
>and was "relearning" how to use one arm over the
>next few weeks.
>
>Approximately one month later, the child suffered
a
>second seizure, this
>time w/o any apparent precipitating event.  The
>child's grandmother was
>present and noted the child "turning blue".  The
>stepfather was also in
>the house at the time, but his location was known
at
>all times.  The child
>was taken to the local ER, transferred to the
>regional tertiary care
>center again, and a repeat CT obtained.  A bleed
>was noted in one of the
>same locations that the original bleeds had been,
>along with shifting of
>brain tissue.  The child was taken to the OR by
>neurosurgery and 50cc
>(yes, 50cc) of blood was tapped off.  The child
>remains an inpatient
>today.
>
>This time, the mother was told that this was from
>Shaken Baby Syndrome,
>and that the new bleed was from a shaking event
>on Friday night.  (Even
>though there was no shaking event possible by
the
>stepfather.)  She then
>was asked to voluntarily sign a form prohibiting
>access by the stepfather
>and consenting to her own visits with her child to
be
>observed.  She did
>so.  Two days ago, DCFS stepped in and has
>taken temporary custody of the
>child and prohibited her to visit.  She has
requested
>to have her child
>transferred to a pediatric hospital about two hours
>away for a "second
>opinion", but this request has been denied by
>DCFS, perhaps because the
>hospital is out of state.
>
>The family is confused, hurt, and not sure what's
>going on.  The mother
>doesn't believe that her husband could have done
>this, but if he did, she
>would have no problems having him prosecuted.
>She's not sure why her own
>custody of the child has been taken away, and she
>feels as if no one is
>telling her what is really going on.  These are
>"simple country folk", so
>to speak, and they feel overwhelmed by a system
>they don't understand.
>
>One of the doctors who came into her child's room
>(and she has no idea
>which one, given that there were so many of them)
>told her that it may not
>really be Shaken Baby Syndrome but rather some
>"Amish Syndrome" that is
>"very rare".  She has never heard from this doctor
>again.
>
>The questions:
>
>o Should a CT have been obtained prior to d/c the
>first time?
>
>o How likely is it that a second bleed at the same
>location could have
>occurred?
>
>o How can they say this is Shaken Baby
Syndrome
>so definitively?  And why
>didn't they say this was the case the first time?
>(The tertiary center is
>now apparently stating that they thought the local
>hospital ER made the
>report, and the local ER thought the tertiary center
>did.)
>
>o What is this "Amish Syndrome"?
>
>If anyone can shed some light on these questions,
>I'd appreciate it.  I
>realize there are a lot of holes in the above story,
>but as I said, I'm
>receiving this third-hand...
>
>Peace and Prosperity,
>Dipesh
>
>-<*>------------------------<*>-
>Dipesh Navsaria, MPH, PA-C
>Physician Assistant, Pediatrics
>Champaign & Danville, Illinois
>()
>
>
>
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